Assessment of physical functioning domain on quality of life of children with cerebral palsy-experience in rural Bangladesh

Ruksana Begum; Mehdi Pervez; Farzana Yasmin; Bikash Chandra Nag; Kanij Fatema; M. Abid Hossain Mollah

doi:10.18203/2349-3291.ijcp20251856

Authors

Ruksana Begum Department of Pediatrics, Medical College for Women and Hospital, Uttara Model Town, Dhaka, Bangladesh
Mehdi Pervez 250 Bed General Hospital, Barguna, Bangladesh
Farzana Yasmin Department of Pediatric Cardiology, Ibrahim Cardiac Hospital and Research Institute, Shahbag, Dhaka, Bangladesh
Bikash Chandra Nag Department of Pediatrics, Sher-E- Bangla Medical College Hospital, Barishal, Bangladesh
Kanij Fatema Department of Pediatric Neurology, Institute of Pediatric Neurodisorder and Autism (IPNA), Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh
M. Abid Hossain Mollah Department of Paediatrics, Ibrahim Medical College and BIRDEM General Hospital, Dhaka, Bangladesh

DOI:

https://doi.org/10.18203/2349-3291.ijcp20251856

Keywords:

Quality of life, Cerebral palsy, Children

Abstract

Background: Cerebral palsy (CP) is the most prevalent health condition linked to childhood disability in Bangladesh. This study was intended to evaluate the physical functioning domain of quality of life (QoL) of children with CP using Peds QLTM inventory in a tertiary care hospital. The aim of this study was to find out physical aspects of the child’s QoL by using PedsQL^TM inventory (physical, emotional, social, schooling), to identify co-morbidities, socio demographic profile of child and parents and to find out relationship between physical functioning domains of QoL score with types, co-morbidities and of socio demographic characteristics.

Methods: To evaluate health related QoL (HRQOL), PedsQL 4.0, a generic tool, validated in Bangladesh was applied to and the questionnaire was answered by parents. Main outcome variable was physical functioning.

Results: Majority of patients (28.16%) have both speech impairment and behavior problem. Intellectual disability was found 13.79%, 14.94% had epilepsy. Overall physical functioning summary score (PFSS) was 21.65 (95% CI). Multiple regression analysis of generic scale core and the variables associated independently with QoL. No statistically significant difference was found between types, co-morbidities of CP, father’s and mother’s education, family income, place of residence with physical domains of QoL score. Among all the types of CP only quadriplegic CP had significant effect on physical functioning score with (p<0.05), but this does not explain the variations in physical functioning score well (R square=0.208).

Conclusions: The results of this study concluded that QoL pertaining to physical functioning domain in children with CP was found low which was most significant among children with quadriplegic CP. Most of the patients had speech impairment and behavior problem.

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