Assessment of quality of life and its predictors in thalassemic children
DOI:
https://doi.org/10.18203/2349-3291.ijcp20232877Keywords:
Thalassemia, QOL, Children, Quality of lifeAbstract
Background: In India, approximately 10,000 children are being born with thalassemia per year contributing to 10% of the total world incidence of thalassemia affected children. With the advancement in medical therapy resulting in early diagnosis and initiation of blood transfusion at an early age, and management of complications, survival rates have improved and such child can survive till second and third decades.
Methods: This study was conducted among 100 children in the age range of 2 to 14 years registered with the Thalassemia clinic, department of paediatrics, Gandhi Medical College and associated Kamla Nehru hospital, Bhopal. All patients underwent routine investigation and other relevant investigations as required. To assess the quality of life of children with thalassemia, pediatric quality of life inventory (PedsQL4) scale was used.
Results: Mean age of children belonging to the age range of less than 4 years- 38±11.38 months whereas that of children in the age range of 5-7 years and 8 to 12 years was 71.08±8.93 month’s and120.32±23.44 (95%CI 112.51-128.12) months respectively. The emotional domain of quality of life was significantly associated with compliance to chelation therapy among children in the age range of less than 4 and 8 to 12 years.
Conclusions: Thalassemia significantly affects negatively on the quality of life of all individuals irrespective of the age of the child. Though, all the domains i.e. physical, emotional, school and social are affected in these patients, physical and school domain are most commonly affected.
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